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PredictERs library [355 articles]

Neue Artikel in PredictERs ordered by to_read.
  • Encouraging Translational Research Through Harmonization of FDA and Common Rule Informed Consent Requirements for Research with Banked Specimens
    Journal of Legal Medicine, Vol. 27, No. 2. (June 2006), pp. 119-166.
    by Barbara Evans, Eric Meslin
    posted to biobanks genetic-research legislation-and-jurisprudence translational-research by PredictER on 2007-07-06 00:43:15 as ***** along with 1 person and 1 group cgreal CGREL
  • Ethical issues in the collection, storage, and research use of human biological materials
    by E Meslin, K Quaid
    posted to biobanks elsi by PredictER on 2007-07-06 00:35:34 as ***** along with 1 person and 1 group cgreal CGREL
  • Governance mechanisms and population biobanks: building a framework for trust.
    GenEdit, Vol. 6, No. 2. (2008)
    by S Wallace, K Bedard, A Kent, BM Knoppers
    posted to population-genetics governance genetics biobanks by PredictER on 2008-10-14 19:05:56 as **
  • Trends in U.S. Attitudes Toward Genetic Testing, 1990-2004
    Public Opin Q, Vol. 72, No. 3. (1 September 2008), pp. 446-458.
    by Eleanor Singer, Mick P Couper, Trivellore E Raghunathan, John Van Hoewyk, Toni C Antonucci
    posted to genetic-testing attitudes by PredictER on 2008-10-10 17:47:00 as **
  • Bioethics, business ethics, and science: bioinformatics and the future of healthcare.
    Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees, Vol. 17, No. 4. (2008), pp. 361-372.
    by KW Goodman, A Cava
    posted to ethics business-ethics bioinformatics by PredictER on 2008-10-09 20:03:02 as **
  • Race as a variable in pharmacogenomics science: from empirical ethics to publication standards.
    Pharmacogenetics and genomics, Vol. 18, No. 10. (October 2008), pp. 837-841.
    by V Ozdemir, JE Graham, B Godard
    posted to race pharmacogenomics empirical-ethics academic-literature by PredictER on 2008-09-18 19:12:10 as **
  • Stroke Genetic Research and Adults With Impaired Decision-Making Capacity. A Survey of IRB and Investigator Practices.
    Stroke; a journal of cerebral circulation (24 July 2008)
    by Donna T T Chen, James F F Meschia, Thomas G G Brott, Robert D D Brown, Bradford B B Worrall,
    posted to attitudes genetic-research irb research-ethics by PredictER on 2008-08-06 22:26:11 as **
  • Race-specific drugs: regulatory trends and public policy.
    Trends in pharmacological sciences, Vol. 29, No. 6. (June 2008), pp. 277-279.
    by DE Winickoff, OK Obasogie
    posted to clinical-trials personalized-medicine pharmacogenomics public-policy race by PredictER on 2008-06-27 17:47:02 as **
  • Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 10, No. 4. (April 2008), pp. 259-261.
    by AR Kemper, CA Boyle, J Aceves, D Dougherty, J Figge, JL Fisch, AR Hinman, CL Greene, CA Kus, J Miller, D Robertson, B Therrell, M Lloyd-Puryear, PC van Dyck, RR Howell
    posted to advisory genetic-testing newborn-screening by PredictER on 2008-06-05 18:01:34 as **
  • Pharmacogenetic testing: not as simple as it seems.
    Genetics in medicine : official journal of the American College of Medical Genetics (16 May 2008)
    by Susanne B Haga, Wylie Burke
    posted to ethical-issues genetic-testing pharmacogenetics by PredictER on 2008-06-05 17:58:52 as **
  • From human genetics and genomics to pharmacogenetics and pharmacogenomics: past lessons, future directions.
    Drug metabolism reviews, Vol. 40, No. 2. (2008), pp. 187-224.
    by DW Nebert, G Zhang, ES Vesell
    posted to personalized-medicine pharmacogenetics pharmacogenomics by PredictER on 2008-06-05 17:51:55 as ** along with 1 person and 1 group Zephyrus Roswell Cancer Crosstalk
  • The Ethics of Information: Absolute Risk Reduction and Patient Understanding of Screening.
    Journal of general internal medicine : official journal of the Society for Research and Education in Primary Care Internal Medicine (18 April 2008)
    by Peter H Schwartz, Eric M Meslin
    posted to genetic-testing patients risk by PredictER on 2008-05-14 16:51:42 as **
  • Assessment of parental understanding by pediatric residents during counseling after newborn genetic screening.
    Archives of pediatrics & adolescent medicine, Vol. 162, No. 3. (March 2008), pp. 199-204.
    by MH Farrell, P Kuruvilla
    posted to genetic-counseling genetic-testing newborn-screening pediatrics by PredictER on 2008-04-15 19:19:26 as **
  • Communicating genetic information in the family: enriching the debate through the notion of integrity
    Medicine, Health Care and Philosophy
    by Paula Boddington, Maggie Gregory
    posted to disclosure ethical-issues genetic-information integrity by PredictER on 2008-04-13 21:58:51 as ** along with 1 person annaszuto
  • An open future? The principle of autonomy within medical ‘codes of conduct’ versus the heteronomy effects of predictive medicine
    Central European Journal of Medicine, Vol. 3, No. 2. (10 June 2008), pp. 141-148.
    by Ignaas Devisch
    posted to autonomy ethical-issues predictive-health by PredictER on 2008-04-13 21:54:55 as **
  • REASSESSING INSURERS' ACCESS TO GENETIC INFORMATION: GENETIC PRIVACY, IGNORANCE, AND INJUSTICE
    Bioethics, Vol. 0, No. 0. (0), pp. ???-???.
    by ELI Feiring
    posted to genetic-information insurance privacy by PredictER on 2008-04-13 21:53:56 as **
  • A pilot study for human tumor/DNA banking: returned more questions than answers.
    Medical oncology (Northwood, London, England) (8 April 2008)
    by A C Cavuşoğlu, S Saydam, M Alakavuklar, T Canda, A Sevinç, Y Kılıç, O Harmancıoğlu, M A Koçdor, M Kınay, H Alanyalı, I Görken, P Balcı, B Demirkan, M Sakızlı, G Güner
    posted to biobanks cancer ethical-issues turkey by PredictER on 2008-04-13 21:20:44 as **
  • Diffusion of information about genetic risk within families.
    Neuromuscular disorders : NMD, Vol. 3, No. 5-6. (v 1993), pp. 571-574.
    by S Ayme, G Macquart-Moulin, C Julian-Reynier, F Chabal, F Giraud
    posted to disclosure genetic-information genetic-testing by PredictER on 2008-04-08 22:39:49 as **
  • Psychological impact of population-based carrier testing for cystic fibrosis: 3-year follow-up. UK Cystic Fibrosis Follow-Up Study Group.
    Lancet, Vol. 347, No. 9013. (25 May 1996), pp. 1443-1446.
    by D Axworthy, DJ Brock, M Bobrow, TM Marteau
    posted to cystic-fibrosis ethical-issues genetic-testing by PredictER on 2008-04-08 22:36:38 as **
  • Ethical dimensions of genetics in pediatric neurology: a look into the future.
    Semin Pediatr Neurol, Vol. 9, No. 1. (March 2002), pp. 53-61.
    by DM Avard, BM Knoppers
    posted to ethical-issues neurology ped pediatric-research pediatrics by PredictER on 2008-04-08 22:34:58 as ** along with 1 person and 1 group ladygoat CGREL
  • Genetics and Society Project.
    Community genetics, Vol. 3, No. 3. (2000), pp. 102-104.
    by D Avard, BM Knoppers
    posted to ethical-issues genetic-research by PredictER on 2008-04-08 22:33:08 as **
  • Partnering in Oncogenetic Research The INHERIT BRCAs Experience: Opportunities and Challenges
    Familial Cancer, Vol. 5, No. 1. (March 2006), pp. 3-13.
    by Denise Avard, Peter Bridge, Lucie Bucci, Jocelyne Chiquette, Michel Dorval, Francine Durocher, Doug Easton, Beatrice Godard, David Goldgar, Bartha Knoppers, Rachel Laframboise, Bernard Lesperance, Marie Plante, Sean Tavtigian, Helene Vezina, Brenda Wilson, Jacques Simard
    posted to brca cancer ethical-issues genetic-research by PredictER on 2008-04-08 22:31:27 as **
  • Monitoring ethical, legal, and social issues in developing population genetic databases.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 5, No. 6. (c 2003), pp. 451-457.
    by MA Austin, SE Harding, CE McElroy
    posted to biobanks ethical-issues by PredictER on 2008-04-08 22:29:30 as **
  • Ethical issues in human genome epidemiology: a case study based on the Japanese American Family Study in Seattle, Washington.
    American journal of epidemiology, Vol. 155, No. 7. (1 April 2002), pp. 585-592.
    by MA Austin
    posted to biobanks ethical-issues genomics by PredictER on 2008-04-08 22:27:22 as ** along with 1 person Daintry
  • Ethnicity and the politics of the new genetics: principles and engagement.
    Ethnicity & health, Vol. 8, No. 2. (May 2003), pp. 91-109.
    by K Atkin
    posted to ethical-issues ethnicity genetic-medicine by PredictER on 2008-04-08 22:23:55 as **
  • Genetic databases and pharmacogenetics: introduction.
    Studies in history and philosophy of biological and biomedical sciences, Vol. 37, No. 3. (September 2006), pp. 499-502.
    by RE Ashcroft, AM Hedgecoe
    posted to biobanks ethical-issues pharmacogenetics by PredictER on 2008-04-08 22:19:22 as **
  • Focus group interviews examining attitudes toward medical research among the Japanese: a qualitative study.
    Bioethics, Vol. 18, No. 5. (September 2004), pp. 448-470.
    by A Asai, M Ohnishi, E Nishigaki, M Sekimoto, S Fukuhara, T Fukui
    posted to attitudes genetic-research japan by PredictER on 2008-04-08 22:13:12 as **
  • Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews.
    BMC Med Ethics, Vol. 3 (9 January 2002)
    by A Asai, M Ohnishi, E Nishigaki, M Sekimoto, S Fukuhara, T Fukui
    posted to attitudes biobanks informed-consent japan by PredictER on 2008-04-08 22:10:14 as ** along with 1 person and 1 group familydoc fammed-publichealth
  • The implications of genetic testing for deafness.
    Ear and hearing, Vol. 24, No. 4. (August 2003), pp. 324-331.
    by KS Arnos
    posted to deafness ethical-issues genetic-testing by PredictER on 2008-04-08 22:08:17 as **
  • Coding and consent: moral challenges of the database project in Iceland.
    Bioethics, Vol. 18, No. 1. (2004), pp. 27-49.
    by V Arnason
    posted to biobanks iceland informed-consent by PredictER on 2008-04-08 22:06:07 as ** along with 1 person and 1 group ladygoat CGREL
  • Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndrome.
    Archives of internal medicine, Vol. 165, No. 10. (23 May 2005), pp. 1125-1129.
    by D Armstrong, E Kline-Rogers, SM Jani, EB Goldman, J Fang, D Mukherjee, BK Nallamothu, KA Eagle
    posted to biobanks cardiovascular-disease hipaa legislation privacy by PredictER on 2008-04-08 22:00:20 as **
  • Ethical Issues Associated with Conducting Genetic Family Studies of Complex Disease.
    Ann Epidemiol, Vol. 15, No. 9. (October 2005), pp. 712-719.
    by Nedal H H Arar, Helen Hazuda, Rebecca Steinbach, Mazen Y Y Arar, Hanna E E Abboud
    posted to attitudes ethical-issues genetic-research by PredictER on 2008-04-08 21:56:35 as ** along with 2 people and 1 group cgreal elsiatcase CGREL
  • Motivations and concerns of patients with access to genetic testing for hereditary pancreatitis.
    The American journal of gastroenterology, Vol. 96, No. 5. (May 2001), pp. 1610-1617.
    by SE Applebaum-Shapiro, JA Peters, JA O'Connell, CE Aston, DC Whitcomb
    posted to attitudes genetic-testing pancreatitis by PredictER on 2008-04-08 21:54:23 as **
  • Ethical issues in psychiatric genetics.
    J Psychiatr Pract, Vol. 10, No. 6. (November 2004), pp. 343-351.
    by PS Appelbaum
    posted to ethical-issues genetic-medicine psychiatrics by PredictER on 2008-04-08 21:50:28 as ** along with 1 person and 1 group ladygoat CGREL
  • Privacy rules for DNA databanks. Protecting coded 'future diaries'.
    JAMA : the journal of the American Medical Association, Vol. 270, No. 19. (17 November 1993), pp. 2346-2350.
    by GJ Annas
    posted to biobanks genetic-information privacy by PredictER on 2008-04-08 21:48:39 as **
  • Hereditary cancer risk notification and testing: how interested is the general population?
    Journal of clinical oncology : official journal of the American Society of Clinical Oncology, Vol. 15, No. 5. (May 1997), pp. 2139-2148.
    by MA Andrykowski, R Lightner, JL Studts, RK Munn
    posted to attitudes cancer genetic-testing risk by PredictER on 2008-04-08 21:44:48 as **
  • Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
    PLoS Biology, Vol. 6, No. 3. (1 March 2008), e73.
    by Timothy Caulfield, Amy L Mcguire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha M Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
    posted to ethical-issues genomics research-ethics by PredictER on 2008-04-04 19:01:26 as ** along with 2 people jasonbobe cntbioet
  • What is in a cause? Exploring the relationship between genetic cause and felt stigma.
    Genet Med, Vol. 8, No. 1. (January 2006), pp. 33-42.
    by P Sankar, MK Cho, PR Wolpe, C Schairer
    posted to discrimination ethical-issues genetic-testing stigma by PredictER on 2008-04-04 17:02:38 as ** along with 2 people and 1 group cgreal elsiatcase CGREL
  • Ancillary risk information and pharmacogenetic tests: social and policy implications
    The Pharmacogenomics Journal, Vol. aop, No. current.
    by NB Henrikson, W Burke, DL Veenstra
    posted to ethical-issues genetic-testing pharmacogenetics policy risk by PredictER on 2008-04-04 17:00:57 as ** along with 2 people elsiatcase jasonbobe
  • Genetic tests for common diseases: new insights, old concerns
    BMJ, Vol. 336, No. 7644. (15 March 2008), pp. 590-593.
    by David Melzer, Stuart Hogarth, Katherine Liddell, Tom Ling, Simon Sanderson, Ron L Zimmern
    posted to direct-to-consumer genetic-testing genomics patients by PredictER on 2008-04-04 16:58:13 as ** along with 1 person omalbam
  • How do we know that research ethics committees are really working? the neglected role of outcomes assessment in research ethics review
    BMC Medical Ethics, Vol. 9 (28 March 2008), 6.
    by Carl H Coleman, Marie C Bouesseau
    posted to irb metrics outcomes research-ethics by PredictER on 2008-04-04 16:44:23 as **
  • Biobanks and Biomarker Research in Cardiovascular Disease.
    The Journal of cardiovascular nursing, Vol. 23, No. 2. (l 2008), pp. 153-158.
    by Lorraine Frazier, Elizabeth Sparks, Jennifer E Sanner, Maria Henderson
    posted to biobanks biomarkers cardiovascular-disease genetic-research nursing by PredictER on 2008-04-04 16:09:17 as **
  • From genetic privacy to open consent.
    Nature reviews. Genetics (1 April 2008)
    by Jeantine E E Lunshof, Ruth Chadwick, Daniel B B Vorhaus, George M M Church
    posted to genetic-information genetic-research informed-consent privacy by PredictER on 2008-04-04 15:58:56 as ** along with 3 people hpiwowar jasonbobe jyuh
  • Currents in Contemporary Ethics
    The Journal of Law, Medicine & Ethics, Vol. 36, No. 1. (2008), pp. 174-178.
    by Rothstein, A Mark
    posted to discrimination genetic-information gina legislation by PredictER on 2008-04-04 15:56:37 as ** along with 1 person jasonbobe
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to confidentiality disclosure research-ethics by PredictER on 2008-04-04 15:51:19 as ** along with 1 person jasonbobe
  • How can we provide effective training for research ethics committee members? A European assessment.
    Journal of medical ethics, Vol. 34, No. 4. (July 2008), pp. 301-302.
    by H Davies, F Wells, C Druml
    posted to europe irb research-ethics by PredictER on 2008-04-02 16:08:14 as **
  • Access to medical records for research purposes: varying perceptions across research ethics boards.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 308-314.
    by D J J Willison, C Emerson, K V V Szala-Meneok, E Gibson, L Schwartz, K M M Weisbaum, F Fournier, K Brazil, M D D Coughlin
    posted to attitudes medical-records research-ethics by PredictER on 2008-04-01 18:24:39 as ** along with 1 person exgxax
  • Thinking ethically about genetic inheritance: liberal rights, communitarianism and the right to privacy for parents of donor insemination children.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 281-284.
    by J Burr, P Reynolds
    posted to genetic-information privacy reproductive-medicine by PredictER on 2008-04-01 18:23:20 as **
  • Predictive genetic testing of children for adult-onset diseases and psychological harm.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 275-278.
    by PJ Malpas
    posted to genetic-testing pediatric-research psychiatric-research risk by PredictER on 2008-04-01 18:21:55 as **
  • Evaluating Online Direct-to-Consumer Marketing of Genetic Tests: Informed Choices or Buyers Beware?
    Genet Test, Vol. 12, No. 1. (2008), pp. 13-23.
    by R Geransar, E Einsiedel
    posted to direct-to-consumer genetic-testing marketing by PredictER on 2008-04-01 18:17:06 as **
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