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PredictERs library [350 articles]

Neue Artikel in PredictERs Bibliothek.
  • Race-specific drugs: regulatory trends and public policy.
    Trends in pharmacological sciences, Vol. 29, No. 6. (June 2008), pp. 277-279.
    by DE Winickoff, OK Obasogie
    posted to race public-policy pharmacogenomics personalized-medicine clinical-trials by PredictER on 2008-06-27 17:47:02 as **
  • Long-term follow-up after diagnosis resulting from newborn screening: statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 10, No. 4. (April 2008), pp. 259-261.
    by AR Kemper, CA Boyle, J Aceves, D Dougherty, J Figge, JL Fisch, AR Hinman, CL Greene, CA Kus, J Miller, D Robertson, B Therrell, M Lloyd-Puryear, PC van Dyck, RR Howell
    posted to newborn-screening genetic-testing advisory by PredictER on 2008-06-05 18:01:34 as **
  • Pharmacogenetic testing: not as simple as it seems.
    Genetics in medicine : official journal of the American College of Medical Genetics (16 May 2008)
    by Susanne B Haga, Wylie Burke
    posted to pharmacogenetics genetic-testing ethical-issues by PredictER on 2008-06-05 17:58:52 as **
  • From human genetics and genomics to pharmacogenetics and pharmacogenomics: past lessons, future directions.
    Drug metabolism reviews, Vol. 40, No. 2. (2008), pp. 187-224.
    by DW Nebert, G Zhang, ES Vesell
    posted to pharmacogenomics pharmacogenetics personalized-medicine by PredictER on 2008-06-05 17:51:55 as **
  • The Ethics of Information: Absolute Risk Reduction and Patient Understanding of Screening.
    Journal of general internal medicine : official journal of the Society for Research and Education in Primary Care Internal Medicine (18 April 2008)
    by Peter H Schwartz, Eric M Meslin
    posted to risk patients genetic-testing by PredictER on 2008-05-14 16:51:42 as **
  • Assessment of parental understanding by pediatric residents during counseling after newborn genetic screening.
    Archives of pediatrics & adolescent medicine, Vol. 162, No. 3. (March 2008), pp. 199-204.
    by MH Farrell, P Kuruvilla
    posted to genetic-counseling genetic-testing newborn-screening pediatrics by PredictER on 2008-04-15 19:19:26 as **
  • Communicating genetic information in the family: enriching the debate through the notion of integrity
    Medicine, Health Care and Philosophy
    by Paula Boddington, Maggie Gregory
    posted to disclosure ethical-issues genetic-information integrity by PredictER on 2008-04-13 21:58:51 as **
  • An open future? The principle of autonomy within medical ‘codes of conduct’ versus the heteronomy effects of predictive medicine
    Central European Journal of Medicine, Vol. 3, No. 2. (10 June 2008), pp. 141-148.
    by Ignaas Devisch
    posted to autonomy ethical-issues predictive-health by PredictER on 2008-04-13 21:54:55 as **
  • REASSESSING INSURERS' ACCESS TO GENETIC INFORMATION: GENETIC PRIVACY, IGNORANCE, AND INJUSTICE
    Bioethics, Vol. 0, No. 0. (0), pp. ???-???.
    by ELI Feiring
    posted to genetic-information insurance privacy by PredictER on 2008-04-13 21:53:56 as **
  • A pilot study for human tumor/DNA banking: returned more questions than answers.
    Medical oncology (Northwood, London, England) (8 April 2008)
    by A C Cavuşoğlu, S Saydam, M Alakavuklar, T Canda, A Sevinç, Y Kılıç, O Harmancıoğlu, M A Koçdor, M Kınay, H Alanyalı, I Görken, P Balcı, B Demirkan, M Sakızlı, G Güner
    posted to biobanks cancer ethical-issues turkey by PredictER on 2008-04-13 21:20:44 as **
  • Diffusion of information about genetic risk within families.
    Neuromuscular disorders : NMD, Vol. 3, No. 5-6. (v 1993), pp. 571-574.
    by S Ayme, G Macquart-Moulin, C Julian-Reynier, F Chabal, F Giraud
    posted to disclosure genetic-information genetic-testing by PredictER on 2008-04-08 22:39:49 as **
  • Psychological impact of population-based carrier testing for cystic fibrosis: 3-year follow-up. UK Cystic Fibrosis Follow-Up Study Group.
    Lancet, Vol. 347, No. 9013. (25 May 1996), pp. 1443-1446.
    by D Axworthy, DJ Brock, M Bobrow, TM Marteau
    posted to cystic-fibrosis ethical-issues genetic-testing by PredictER on 2008-04-08 22:36:38 as **
  • Ethical dimensions of genetics in pediatric neurology: a look into the future.
    Semin Pediatr Neurol, Vol. 9, No. 1. (March 2002), pp. 53-61.
    by DM Avard, BM Knoppers
    posted to ethical-issues neurology ped pediatric-research pediatrics by PredictER on 2008-04-08 22:34:58 as ** along with 1 person and 1 group ladygoat CGREL
  • Genetics and Society Project.
    Community genetics, Vol. 3, No. 3. (2000), pp. 102-104.
    by D Avard, BM Knoppers
    posted to ethical-issues genetic-research by PredictER on 2008-04-08 22:33:08 as **
  • Partnering in Oncogenetic Research The INHERIT BRCAs Experience: Opportunities and Challenges
    Familial Cancer, Vol. 5, No. 1. (March 2006), pp. 3-13.
    by Denise Avard, Peter Bridge, Lucie Bucci, Jocelyne Chiquette, Michel Dorval, Francine Durocher, Doug Easton, Beatrice Godard, David Goldgar, Bartha Knoppers, Rachel Laframboise, Bernard Lesperance, Marie Plante, Sean Tavtigian, Helene Vezina, Brenda Wilson, Jacques Simard
    posted to brca cancer ethical-issues genetic-research by PredictER on 2008-04-08 22:31:27 as **
  • Monitoring ethical, legal, and social issues in developing population genetic databases.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 5, No. 6. (c 2003), pp. 451-457.
    by MA Austin, SE Harding, CE McElroy
    posted to biobanks ethical-issues by PredictER on 2008-04-08 22:29:30 as **
  • Ethical issues in human genome epidemiology: a case study based on the Japanese American Family Study in Seattle, Washington.
    American journal of epidemiology, Vol. 155, No. 7. (1 April 2002), pp. 585-592.
    by MA Austin
    posted to biobanks ethical-issues genomics by PredictER on 2008-04-08 22:27:22 as ** along with 1 person Daintry
  • Ethnicity and the politics of the new genetics: principles and engagement.
    Ethnicity & health, Vol. 8, No. 2. (May 2003), pp. 91-109.
    by K Atkin
    posted to ethical-issues ethnicity genetic-medicine by PredictER on 2008-04-08 22:23:55 as **
  • Genetic databases and pharmacogenetics: introduction.
    Studies in history and philosophy of biological and biomedical sciences, Vol. 37, No. 3. (September 2006), pp. 499-502.
    by RE Ashcroft, AM Hedgecoe
    posted to biobanks ethical-issues pharmacogenetics by PredictER on 2008-04-08 22:19:22 as **
  • Focus group interviews examining attitudes toward medical research among the Japanese: a qualitative study.
    Bioethics, Vol. 18, No. 5. (September 2004), pp. 448-470.
    by A Asai, M Ohnishi, E Nishigaki, M Sekimoto, S Fukuhara, T Fukui
    posted to attitudes genetic-research japan by PredictER on 2008-04-08 22:13:12 as **
  • Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews.
    BMC Med Ethics, Vol. 3 (9 January 2002)
    by A Asai, M Ohnishi, E Nishigaki, M Sekimoto, S Fukuhara, T Fukui
    posted to attitudes biobanks informed-consent japan by PredictER on 2008-04-08 22:10:14 as ** along with 1 person and 1 group familydoc fammed-publichealth
  • The implications of genetic testing for deafness.
    Ear and hearing, Vol. 24, No. 4. (August 2003), pp. 324-331.
    by KS Arnos
    posted to deafness ethical-issues genetic-testing by PredictER on 2008-04-08 22:08:17 as **
  • Coding and consent: moral challenges of the database project in Iceland.
    Bioethics, Vol. 18, No. 1. (2004), pp. 27-49.
    by V Arnason
    posted to biobanks iceland informed-consent by PredictER on 2008-04-08 22:06:07 as ** along with 1 person and 1 group ladygoat CGREL
  • Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndrome.
    Archives of internal medicine, Vol. 165, No. 10. (23 May 2005), pp. 1125-1129.
    by D Armstrong, E Kline-Rogers, SM Jani, EB Goldman, J Fang, D Mukherjee, BK Nallamothu, KA Eagle
    posted to biobanks cardiovascular-disease hipaa legislation privacy by PredictER on 2008-04-08 22:00:20 as **
  • Ethical Issues Associated with Conducting Genetic Family Studies of Complex Disease.
    Ann Epidemiol, Vol. 15, No. 9. (October 2005), pp. 712-719.
    by Nedal H H Arar, Helen Hazuda, Rebecca Steinbach, Mazen Y Y Arar, Hanna E E Abboud
    posted to attitudes ethical-issues genetic-research by PredictER on 2008-04-08 21:56:35 as ** along with 2 people and 1 group cgreal elsiatcase CGREL
  • Motivations and concerns of patients with access to genetic testing for hereditary pancreatitis.
    The American journal of gastroenterology, Vol. 96, No. 5. (May 2001), pp. 1610-1617.
    by SE Applebaum-Shapiro, JA Peters, JA O'Connell, CE Aston, DC Whitcomb
    posted to attitudes genetic-testing pancreatitis by PredictER on 2008-04-08 21:54:23 as **
  • Ethical issues in psychiatric genetics.
    J Psychiatr Pract, Vol. 10, No. 6. (November 2004), pp. 343-351.
    by PS Appelbaum
    posted to ethical-issues genetic-medicine psychiatrics by PredictER on 2008-04-08 21:50:28 as ** along with 1 person and 1 group ladygoat CGREL
  • Privacy rules for DNA databanks. Protecting coded 'future diaries'.
    JAMA : the journal of the American Medical Association, Vol. 270, No. 19. (17 November 1993), pp. 2346-2350.
    by GJ Annas
    posted to biobanks genetic-information privacy by PredictER on 2008-04-08 21:48:39 as **
  • Hereditary cancer risk notification and testing: how interested is the general population?
    Journal of clinical oncology : official journal of the American Society of Clinical Oncology, Vol. 15, No. 5. (May 1997), pp. 2139-2148.
    by MA Andrykowski, R Lightner, JL Studts, RK Munn
    posted to attitudes cancer genetic-testing risk by PredictER on 2008-04-08 21:44:48 as **
  • Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
    PLoS Biology, Vol. 6, No. 3. (1 March 2008), e73.
    by Timothy Caulfield, Amy L Mcguire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha M Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
    posted to ethical-issues genomics research-ethics by PredictER on 2008-04-04 19:01:26 as ** along with 2 people cntbioet jasonbobe
  • What is in a cause? Exploring the relationship between genetic cause and felt stigma.
    Genet Med, Vol. 8, No. 1. (January 2006), pp. 33-42.
    by P Sankar, MK Cho, PR Wolpe, C Schairer
    posted to discrimination ethical-issues genetic-testing stigma by PredictER on 2008-04-04 17:02:38 as ** along with 2 people and 1 group cgreal elsiatcase CGREL
  • Ancillary risk information and pharmacogenetic tests: social and policy implications
    The Pharmacogenomics Journal, Vol. aop, No. current.
    by NB Henrikson, W Burke, DL Veenstra
    posted to ethical-issues genetic-testing pharmacogenetics policy risk by PredictER on 2008-04-04 17:00:57 as ** along with 2 people elsiatcase jasonbobe
  • Genetic tests for common diseases: new insights, old concerns
    BMJ, Vol. 336, No. 7644. (15 March 2008), pp. 590-593.
    by David Melzer, Stuart Hogarth, Katherine Liddell, Tom Ling, Simon Sanderson, Ron L Zimmern
    posted to direct-to-consumer genetic-testing genomics patients by PredictER on 2008-04-04 16:58:13 as ** along with 1 person omalbam
  • How do we know that research ethics committees are really working? the neglected role of outcomes assessment in research ethics review
    BMC Medical Ethics, Vol. 9 (28 March 2008), 6.
    by Carl H Coleman, Marie C Bouesseau
    posted to irb metrics outcomes research-ethics by PredictER on 2008-04-04 16:44:23 as **
  • Biobanks and Biomarker Research in Cardiovascular Disease.
    The Journal of cardiovascular nursing, Vol. 23, No. 2. (l 2008), pp. 153-158.
    by Lorraine Frazier, Elizabeth Sparks, Jennifer E Sanner, Maria Henderson
    posted to biobanks biomarkers cardiovascular-disease genetic-research nursing by PredictER on 2008-04-04 16:09:17 as **
  • From genetic privacy to open consent.
    Nature reviews. Genetics (1 April 2008)
    by Jeantine E E Lunshof, Ruth Chadwick, Daniel B B Vorhaus, George M M Church
    posted to genetic-information genetic-research informed-consent privacy by PredictER on 2008-04-04 15:58:56 as ** along with 3 people jyuh hpiwowar jasonbobe
  • Currents in Contemporary Ethics
    The Journal of Law, Medicine & Ethics, Vol. 36, No. 1. (2008), pp. 174-178.
    by Rothstein, A Mark
    posted to discrimination genetic-information gina legislation by PredictER on 2008-04-04 15:56:37 as ** along with 1 person jasonbobe
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to confidentiality disclosure research-ethics by PredictER on 2008-04-04 15:51:19 as ** along with 1 person jasonbobe
  • How can we provide effective training for research ethics committee members? A European assessment.
    Journal of medical ethics, Vol. 34, No. 4. (July 2008), pp. 301-302.
    by H Davies, F Wells, C Druml
    posted to europe irb research-ethics by PredictER on 2008-04-02 16:08:14 as **
  • Access to medical records for research purposes: varying perceptions across research ethics boards.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 308-314.
    by D J J Willison, C Emerson, K V V Szala-Meneok, E Gibson, L Schwartz, K M M Weisbaum, F Fournier, K Brazil, M D D Coughlin
    posted to attitudes medical-records research-ethics by PredictER on 2008-04-01 18:24:39 as **
  • Thinking ethically about genetic inheritance: liberal rights, communitarianism and the right to privacy for parents of donor insemination children.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 281-284.
    by J Burr, P Reynolds
    posted to genetic-information privacy reproductive-medicine by PredictER on 2008-04-01 18:23:20 as **
  • Predictive genetic testing of children for adult-onset diseases and psychological harm.
    J Med Ethics, Vol. 34, No. 4. (July 2008), pp. 275-278.
    by PJ Malpas
    posted to genetic-testing pediatric-research psychiatric-research risk by PredictER on 2008-04-01 18:21:55 as **
  • Evaluating Online Direct-to-Consumer Marketing of Genetic Tests: Informed Choices or Buyers Beware?
    Genet Test, Vol. 12, No. 1. (2008), pp. 13-23.
    by R Geransar, E Einsiedel
    posted to direct-to-consumer genetic-testing marketing by PredictER on 2008-04-01 18:17:06 as **
  • Ethical, legal, and social implications of biobanks for genetics research.
    Adv Genet, Vol. 60 (2008), pp. 505-544.
    by SB Haga, LM Beskow
    posted to biobanks ethical-issues genetic-research by PredictER on 2008-03-27 00:10:41 as ** along with 3 people CurAbility jasonbobe PAULIUS07
  • Patenting and licensing in genetic testing
    Eur J Hum Genet, Vol. 16, No. 4. (0000), pp. 405-411.
    by S Ayme, G Matthijs, S Soini
    posted to genetic-testing intellectual-property patents by PredictER on 2008-03-22 17:40:31 as ** along with 1 person jasonbobe
  • Increased genetic counseling support improves communication of genetic information in families.
    Genet Med, Vol. 10, No. 3. (March 2008), pp. 167-172.
    by LE Forrest, J Burke, S Bacic, DJ Amor
    posted to communication genetic-counseling genetic-information by PredictER on 2008-03-22 02:26:28 as **
  • Incorporating ethnicity into genetic risk assessment for Alzheimer disease: the REVEAL study experience.
    Genet Med, Vol. 10, No. 3. (March 2008), pp. 207-214.
    by KD Christensen, JS Roberts, CD Royal, GA Fasaye, T Obisesan, LA Cupples, PJ Whitehouse, MB Butson, E Linnenbringer, NR Relkin, L Farrer, R Cook-Deegan, RC Green
    posted to alzheimers ethical-issues ethnicity genetic-research risk by PredictER on 2008-03-22 02:25:20 as **
  • Recreational genomics? Dreams and fears on genetic susceptibility screening
    Eur J Hum Genet, Vol. 16, No. 4. (0000), pp. 403-404.
    by Gertjan B van Ommen, Martina C Cornel
    posted to editorial europe genomics predictive-health by PredictER on 2008-03-22 00:51:03 as ** along with 1 person jasonbobe
  • Twenty-first century brain banking: at the crossroads
    Acta Neuropathologica
    by Manuel Graeber
    posted to biobanks neurology by PredictER on 2008-03-20 14:05:52 as **
  • Genetic testing and breach of patient confidentiality: Law, ethics, and pragmatics.
    Am J Obstet Gynecol (8 March 2008)
    by Howard Minkoff, Jeffrey Ecker
    posted to confidentiality genetic-testing law by PredictER on 2008-03-13 01:02:31 as ** along with 1 person jasonbobe
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